The XMRV Blog

Growing numbers join CFS / ME MAP

December 2, 2009
Less than 24 hours after it went live we've already had many sufferers add themselves to the map. I think its a great way to show people how many people are out there who need help - it brings home the message more clearly than stories talking about X number of sufferers. Even if the XMRV virus turns out not to be the cause of neuro-immune diseases, it has delivered much needed press coverage. We need to keep up the momentum and keep CFS / XMRV in the media.

Posted by Craig.

 

CFS / ME MAP of SUFFERERS

December 1, 2009
We've added an interactive map (http://xmrv.me.uk/me-cfs-global-map.php) which can be updated by visitors to help build up a global picture of ME / CFS sufferers. Are there any hotspots? How many sufferers are there? Please take the time to add your location to the map.



Continue reading...

Posted by Craig.

 

XMRV Info

December 1, 2009
There's a ton of useful information available online about XMRV. Here are just two videos you should check out:

Professor of Molecular Biology/Microbiology on XMRV in CFS - http://www.youtube.com/watch?v=wnuJSLnoZjk

I especially like Annette Whittemore's Speech on XMRV -http://www.youtube.com/watch?v=ReIffHuaEHA

Continue reading...

Posted by Craig.

 
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About Me


After a couple of years' of illness my sister was diagnosed with ME in 1993. Years, and a battery of tests, later she was also diagnosed as having Fibromyalgia. At first her illness meant she'd have to rest after any exertion or socializing. Over time her condition has worsened to the stage where she is in bed in a darkened room 24/7. She has trouble tolerating light and noise and suffers from near constant headaches and burning pains.
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