The XMRV Blog

Browsing Archive: March, 2010

Documentary about CFS ME

Posted by Craig on Wednesday, March 31, 2010,
I just read about plans to make a documentary about the plight of ME sufferers. Looks interesting - check out the teaser trailer on the site: http://www.whataboutme.biz/index.html

From the site: "We hope to spread the word through this website which will have videos and podcasts on ME, short virals on the ME situation delivered multi-platform, a TV documentary aimed at a prime-time audience, a worldwide theatrical release and a docu-drama dramatizing an ME sufferer’s struggle, based on the n...
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Regarding the European Studies

Posted by Craig on Wednesday, March 17, 2010,
If XMRV does not, in fact, play a role in ME then the sooner we can establish this the better; to blindly cling to XMRV as a cause would divert attention and resources away from other avenues of enquiry.

But my concern is that the latest studies suggesting that there's not a link (and subsequent discussion/media coverage) don't address a number of points raised by the WPI:

I've taken some of the key points listed on the WPI website http://www.wpinstitute.org/news/news_current.html
 
  •   The authors...

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XMRV Studies

Posted by Craig on Wednesday, March 17, 2010,
The recent UK studies that have recently cast doubt on the link between XMRV and ME are disappointing to say the least. I read a short piece in the BMJ that discussed these studies. The article did seem to me to take delight (maybe that's too strong a word) in the fact that the US results are looking questionable. Today I found an interesting post http://www.meactionuk.org.uk/Wesselys_Way.htm which lists some quotes over the years from psychiatrist Professor Simon Wessely who co-authored the ...
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About Me


After a couple of years' of illness my sister was diagnosed with ME in 1993. Years, and a battery of tests, later she was also diagnosed as having Fibromyalgia. At first her illness meant she'd have to rest after any exertion or socializing. Over time her condition has worsened to the stage where she is in bed in a darkened room 24/7. She has trouble tolerating light and noise and suffers from near constant headaches and burning pains.
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