The XMRV Blog

Browsing Archive: December, 2009

XMRV Testing now available in London...

Posted by Craig on Tuesday, December 22, 2009,
OK, it's good news again that XMRV is being taken seriously. But what exactly is this test designed to do? Will peoples' samples be used in the replication studies of the WPI's research? Or is it simply a private test so people know if they have XMRV? If it's the latter, of what use will the results be at this stage? There's still no confirmation that XMRV actually causes CFS/ME. Of course we're all hoping that the research will come through that proves causation, but right now the science on...
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Raising money for XMRV research

Posted by Craig on Monday, December 7, 2009,
If everyone who has visited the XMRV Map had donated $10 to a CFS or Fibro charity we'd have raised almost half a million dollars in less than one week! Makes you think...

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Growing numbers join CFS / ME MAP

Posted by Craig on Wednesday, December 2, 2009,
Less than 24 hours after it went live we've already had many sufferers add themselves to the map. I think its a great way to show people how many people are out there who need help - it brings home the message more clearly than stories talking about X number of sufferers. Even if the XMRV virus turns out not to be the cause of neuro-immune diseases, it has delivered much needed press coverage. We need to keep up the momentum and keep CFS / XMRV in the media.

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CFS / ME MAP of SUFFERERS

Posted by Craig on Tuesday, December 1, 2009,
We've added an interactive map (http://xmrv.me.uk/me-cfs-global-map.php) which can be updated by visitors to help build up a global picture of ME / CFS sufferers. Are there any hotspots? How many sufferers are there? Please take the time to add your location to the map.



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XMRV Info

Posted by Craig on Tuesday, December 1, 2009,
There's a ton of useful information available online about XMRV. Here are just two videos you should check out:

Professor of Molecular Biology/Microbiology on XMRV in CFS - http://www.youtube.com/watch?v=wnuJSLnoZjk

I especially like Annette Whittemore's Speech on XMRV -http://www.youtube.com/watch?v=ReIffHuaEHA

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About Me


After a couple of years' of illness my sister was diagnosed with ME in 1993. Years, and a battery of tests, later she was also diagnosed as having Fibromyalgia. At first her illness meant she'd have to rest after any exertion or socializing. Over time her condition has worsened to the stage where she is in bed in a darkened room 24/7. She has trouble tolerating light and noise and suffers from near constant headaches and burning pains.
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