The XMRV Blog

Chronic fatigue syndrome, 'not caused by the XMRV virus'. Or is it?

December 21, 2010
XMRV is in the headlines again. This time the media have picked up on a new batch of research published in the journal Retrovirology. In the latest work, the team, from London and the University of Oxford, used DNA sequencing methods to study XMRV. They say their evidence shows the virus found in patient samples arose from laboratory contamination."Our conclusion is quite simple: XMRV is not the cause of chronic fatigue syndrome," says Professor Greg Towers, a Wellcome Trust Senior Research Fellow at University College London (UCL). "All our evidence shows that the sequences from the virus genome in cell culture have contaminated human chronic fatigue syndrome and prostate cancer samples.

The WPI, who conducted the initial XMRV research (published in Science) quickly put out a statement saying that the new research does not prove there is no link between CFS and XMRV: "The coauthors stand by the conclusions of Lombardi et al. Nothing that has been published to date refutes our data." Judy A. Mikovits.

The Lombardi et al. and Lo et al. studies were done using four different methods of detection. They were not simply PCR experiments, as were the studies by McClure et al. and others who have recently reported their difficulties with contamination. Experienced researchers such as Mikovits, Lombardi, Lo and their collaborators understand the limitations of PCR technology, especially the possibility of sample contamination. As a result, we and Lo et al. conducted rigorous studies to prevent and rule out any possibility that the results reported were from contamination.

In addition to the use of PCR methodology, the Lombardi team used two other scientific techniques to determine whether, in fact, we had found new retroviruses in human blood samples. We identified a human antibody response to a gamma retroviral infection and we demonstrated that live gamma retrovirus isolated from human blood could infect human cells in culture. These scientific findings cannot be explained by contamination with mouse cells, mouse DNA or XMRV-related virus-contaminated human tumor cells. No mouse cell lines and none of the human cell lines reported today by Hue et al. to contain XMRV were ever cultured in the WPI lab where our PCR experiments were performed. Humans cannot make antibodies to viruses related to murine leukemia viruses unless they have been exposed to virus proteins. Therefore, recent publications regarding PCR contamination do not change the conclusions of the Lombardi et al. and Lo et al. studies that concluded that patients with ME/CFS are infected with human gammaretroviruses. We have never claimed that CFS was caused by XMRV,only that CFS patients possess antibodies to XMRV related proteins and harbor infectious XMRV, which integrates into human chromosomes and thus is a human infection of as yet unknown pathogenic potential.
 

Science Vs Psychobabble: on the defensive over new CFS research

August 25, 2010
Here's a great example of the kind of skeptical, sneering, reaction that CFS patients have come to expect from some sections of the medical profession. In his article [1] for Psychology Today, Dr. Mark Borigini, appears to adopts a "told you so" attitude, by highlighting the fact that the latest study from PNAS did not find traces of XMRV in CFS patients. However, the latest research did find a related retrovirus in a high number of CFS patients (86.5%). Borigini, who previously spoke of "chr...
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PNAS finds virus in 86.5% of CFS patients in study

August 24, 2010
This latest study didn't find XMRV in CFS patients, but researchers said the variants of MLV-like viruses (closely related to XMRV) they found in CFS patients is evidence of a link between the virus family and the syndrome.

The paper can be viewed here: http://www.pnas.org/content/early/2010/08/16/1006901107.full.pdf+html

The findings have already received coverage in the national press:

http://www.nytimes.com/2010/08/24/health/research/24fatigue.html?hp

http://voices.washingtonpost.com/checkup...
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XMRV findings replicated and confirmed by the U.S. Food and Drug Administration?

August 18, 2010
Some interesting news here (http://www.rgj.com/article/20100816/NEWS/100816069) indicating that the Whittemore Peterson Institute's XMRV research has been replicated by the FDA, with a review of their findings scheduled to be published in September.
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Documentary about CFS ME

March 31, 2010
I just read about plans to make a documentary about the plight of ME sufferers. Looks interesting - check out the teaser trailer on the site: http://www.whataboutme.biz/index.html

From the site: "We hope to spread the word through this website which will have videos and podcasts on ME, short virals on the ME situation delivered multi-platform, a TV documentary aimed at a prime-time audience, a worldwide theatrical release and a docu-drama dramatizing an ME sufferer’s struggle, based on the n...
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Regarding the European Studies

March 17, 2010
If XMRV does not, in fact, play a role in ME then the sooner we can establish this the better; to blindly cling to XMRV as a cause would divert attention and resources away from other avenues of enquiry.

But my concern is that the latest studies suggesting that there's not a link (and subsequent discussion/media coverage) don't address a number of points raised by the WPI:

I've taken some of the key points listed on the WPI website http://www.wpinstitute.org/news/news_current.html
 
  •   The authors...

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XMRV Studies

March 17, 2010
The recent UK studies that have recently cast doubt on the link between XMRV and ME are disappointing to say the least. I read a short piece in the BMJ that discussed these studies. The article did seem to me to take delight (maybe that's too strong a word) in the fact that the US results are looking questionable. Today I found an interesting post http://www.meactionuk.org.uk/Wesselys_Way.htm which lists some quotes over the years from psychiatrist Professor Simon Wessely who co-authored the ...
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UK XMRV Study Doesn't Support Association Between XMRV & ME/CFS

January 7, 2010
Yesterday a number of newspapers reported results of a UK study which does not support an association between the XMRV virus and CFS in UK patients.

The study was carried out by Imperial College London and King’s College London and published in the peer-reviewed journal PLoS ONE.

Blood samples were taken from 186 ME patients and tested for the presence of DNA from XMRV. A number of control tests were also carried out to show that the DNA in these samples was intact, that any positive findings...
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XMRV Testing now available in London...

December 22, 2009
OK, it's good news again that XMRV is being taken seriously. But what exactly is this test designed to do? Will peoples' samples be used in the replication studies of the WPI's research? Or is it simply a private test so people know if they have XMRV? If it's the latter, of what use will the results be at this stage? There's still no confirmation that XMRV actually causes CFS/ME. Of course we're all hoping that the research will come through that proves causation, but right now the science on...
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Raising money for XMRV research

December 7, 2009
If everyone who has visited the XMRV Map had donated $10 to a CFS or Fibro charity we'd have raised almost half a million dollars in less than one week! Makes you think...

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About Me


After a couple of years' of illness my sister was diagnosed with ME in 1993. Years, and a battery of tests, later she was also diagnosed as having Fibromyalgia. At first her illness meant she'd have to rest after any exertion or socializing. Over time her condition has worsened to the stage where she is in bed in a darkened room 24/7. She has trouble tolerating light and noise and suffers from near constant headaches and burning pains.
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