Chronic Fatigue Syndrome & Fibromyalgia World Map

World Map of Chronic Fatigue Syndrome & Fibromyalgia

 

Because of the volume of people now on the map it can take some time to load. Thanks for your patience.


This map is for sufferers to plot their location to help us build a picture of the global ME/CFS and Fibromyalgia community.

If you have been diagnosed with CFS/ ME please add yourself to this map by completing the form below. The map is updated daily. 

Please also email a link to anyone else you know who suffers from Chronic Fatigue Syndrome or Fibromyalgia symptoms.



 

Please click here to see a larger version.  


 Add yourself to the Chronic Fatigue Syndrome & Fibromyalgia Map!


If you have moved since contracting the illness please use the post/zip code of where you fell ill.

Sorry, but for your privacy, we cannot display email addresses on the map.





Leave a message for others on the Map! 

XMRV Basics


XMRV is a human retrovirus and is similar to HIV. Normal viruses enter and leave the body, however a retrovirus attaches itself to a person's DNA, becoming part of its host and staying with the person for life. Researchers have found the presence of a retrovirus called XMRV in blood samples from a high percentage of Chronic Fatigue (ME/CFS) patients who took part in the study.  A small number of Fibromyalgia samples also tested positive for XMRV. It is not yet clear whether XMRV is the underlying cause of ME/CFS and/or Fibromyalgia.

Researchers at the Whittemore Peterson Institute suspected XMRV may be linked to neuro-immune diseases because those diagnosed with ME/CFS have a unique immune deficiency in part of their antiviral system. This deficiency was also found in patients whose cancer samples led to the discovery of XMRV.  

XMRV cannot be transmitted through the air. Rather, it is thought that XMRV is transmitted through body fluids (blood, semen, breast etc) This means XMRV may be transmitted through sexual contact, blood transfusions, and sharing needles.

Recent research has shown that of the anti-retrovirals currently available only AZT blocked XMRV infection and replication. If XMRV becomes established as a cause of CFS/ME or Fibromyalgia AZT may be useful for preventing or treating XMRV infections in humans. However doctors and scientists strongly advise against anyone with CFS/ME or other neuro-immune diseases from taking this medication; far more research is required. 











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